by RachelLee | Jul 19, 2023 | Ehlers-Danlos Syndrome, General, Patients
Let’s talk ENT’s, Vocal Therapists and Vocal dysfunction in EDS! My story: Severe chord bowing, hypertension in interior and exterior muscles, dystonia complicating all of the above, TMJ, resulting dysphagia – swallowing issues. Most EDSers develop...
by RachelLee | Nov 11, 2021 | General
It’s finally here! This blog I mean. With EDS, you have to count the simple things. Fall is here, and with it come the inevitable slew of…..FOLLOW UPS. More doctors appointments that you ever think might happen in two months, and you always imagine it...
by RachelLee | Oct 6, 2021 | Patients, Physicians
Posted September 30, 2021 A statement from The Ehlers-Danlos Society and the EDS and HSD International Consortium Pain Working Group. Pain is common among persons living with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) and is a major...
by RachelLee | Sep 19, 2021 | General, Genetics, Patients
Genetics. Whew! For Ehlers-Danlos Syndrome it’s gold standard. For hypermobile Ehlers-Danlos, it’s nearly impossible to SEE the geneticist nowadays, and Classic EDS isn’t far behind. The reason is because of the influx of patients demonstrating clearly to geneticists...
by RachelLee | Aug 24, 2021 | General
Have you ever felt overwhelmed by people and a sense that one more conversation will push you over the edge? If you have, you’re not alone. One of the most fatiguing and triggering tasks of a chronic condition is communicating with human beings. We are often so...
