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Ehlers-Danlos/HSD’s and Vocal Cord Dysfunction

Ehlers-Danlos/HSD’s and Vocal Cord Dysfunction

by RachelLee | Jul 19, 2023 | Ehlers-Danlos Syndrome, General, Patients

Let’s talk ENT’s, Vocal Therapists and Vocal dysfunction in EDS! My story: Severe chord bowing, hypertension in interior and exterior muscles, dystonia complicating all of the above, TMJ, resulting dysphagia – swallowing issues. Most EDSers develop...
Grief as a Tool for Sensory Resilience

Grief as a Tool for Sensory Resilience

by RachelLee | Apr 2, 2023 | Autism, General, Mental Health

Over a decade ago now, I lost two children.  My babes were only a couple months old but as research has well established, our minds and bodies crave connection with loved ones regardless of how old they are or visually present, and I have deeply loved all 5 of my...
SSRI’s Cause Thickening of Collagen in Mitral Valve: A Risk to Ehlers-Danlos Patients

SSRI’s Cause Thickening of Collagen in Mitral Valve: A Risk to Ehlers-Danlos Patients

by RachelLee | Feb 17, 2023 | General, Patients

SSRI’s shown to cause thickening of collagen in the mitral valve, exacerbating underlying valve dysfunctions. While mitral valve prolapse is rarely shown to require surgery when found in the hEDS population, research in the last few years has shown that it is a...
Low Histamine: Is Your Anti-Inflammatory Diet Really Doing its Job?

Low Histamine: Is Your Anti-Inflammatory Diet Really Doing its Job?

by RachelLee | Jul 20, 2022 | Patients

Let’s start off the week with a recap on Low Histamine Diet and Mast Cell Dysfunctions and/or Syndromes. What is it? What are THEY? Why do we need it? And, How does it Help? Histamine is one of the mast cells in your body, a piece of your immune system. Your...
The Fight for Water: Dehydration and Vascular Access needs in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

The Fight for Water: Dehydration and Vascular Access needs in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

by RachelLee | Nov 19, 2021 | General, Patients, Physicians

by Rachel Lee Davis, with Dr. Peter Bream, Jr., MD FSIR The Fight for Water Water is fundamental to human life. We are taught this in schools and in our homes, we experience this when we are thirsty. Some understand this because of their geography and access to wells...
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Recent Posts

  • Ehlers-Danlos/HSD’s and Vocal Cord Dysfunction
  • Grief as a Tool for Sensory Resilience
  • SSRI’s Cause Thickening of Collagen in Mitral Valve: A Risk to Ehlers-Danlos Patients
  • Low Histamine: Is Your Anti-Inflammatory Diet Really Doing its Job?
  • The Fight for Water: Dehydration and Vascular Access needs in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

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