Rachel Lee Patient Advocacy Consulting, LLC
Trust – Courage – Hope
Specializing in Ehlers-Danlos Syndromes, Autism and Chronic Illness
“Hope is being able to see that there is light despite all of the darkness.”
-Desmond Tutu
RLPAC Latest Blog Posts
Monkey Say, Monkey Do: Doctor Speak
In my work, I often hear frustration from physicians about how patients communicate. And I can sympathize, of course! When we're trying to solve a complex problem for someone it is difficult to get the information you need in the short time typically allowed! And if...
Ehlers-Danlos/HSD’s and Vocal Cord Dysfunction
Let's talk ENT's, Vocal Therapists and Vocal dysfunction in EDS! My story: Severe chord bowing, hypertension in interior and exterior muscles, dystonia complicating all of the above, TMJ, resulting dysphagia - swallowing issues. Most EDSers develop at least one of...
Grief as a Tool for Sensory Resilience
Over a decade ago now, I lost two children. My babes were only a couple months old but as research has well established, our minds and bodies crave connection with loved ones regardless of how old they are or visually present, and I have deeply loved all 5 of my...
SSRI’s Cause Thickening of Collagen in Mitral Valve: A Risk to Ehlers-Danlos Patients
SSRI's shown to cause thickening of collagen in the mitral valve, exacerbating underlying valve dysfunctions. While mitral valve prolapse is rarely shown to require surgery when found in the hEDS population, research in the last few years has shown that it is a...
Low Histamine: Is Your Anti-Inflammatory Diet Really Doing its Job?
Let's start off the week with a recap on Low Histamine Diet and Mast Cell Dysfunctions and/or Syndromes. What is it? What are THEY? Why do we need it? And, How does it Help? Histamine is one of the mast cells in your body, a piece of your immune system. Your body...