Motivation – Community – Education
Be a part of the change by bringing Rachel for a Speaking Out! advocacy event in your community today.
Living with Ehlers-Danlos and hypermobility spectrum disorders is no small feat. Frequent misunderstandings lead to minimizing of symptoms and lifestyle choices by parents, teachers, doctors, and friends.
The reality is that hypermobile Ehlers-Danlos and joint hypermobility syndromes are as common as 1 in 600 people. And even though other EDS types are more rare, they all share the reality of the more malignant features of hypermobile conditions.
Research into EDS and its 14 Sub-types is expanding on a daily basis, and the need for awareness of its prevalence and the malignant features of even the more benign end of the spectrum is critical to every sphere of society.
- Schools and Youth Development Programs
- Sports Programs
- Dance Programs
- Parenting & Development
- Occupational Therapy Practices
- Physical Therapy Practices
- Primary Care Clinics for adults and children.
- Hospitals, Emergency Rooms, Urgent Care
- Workplaces and HR Heads
- Churches and Civic organizations
- Military and Law Enforcement
- Daycares and Childcare Programs
Please consider Rachel Lee as a resource and tool for YOUR community’s awareness and growth.
As patients with a chronic illness we often face people who minimize our conditions or ignore them altogether. We experience dismissive and ignorant attitudes in our work places, churches, schools and families in ways which undermine our fight for stability and long term physical health, not to mention our mental health.
Much like the neuro-divergent spectrum, patients who live with a chronic condition tend to speak a different language than those around them. We have dialects for masking our pain, or expressing it with emphasis in contexts where we desperately need the support of those around us. We have a dialect for discussing our conditions up front, with medal language and terms others may not recognize but is necessary for us in order to keep perspective on our health care, or to persuade physicians for help.
Whether you represent a patient community in need of support and encouragement, a workplace seeking counsel on better practices for its employees, or a social community seeking greater awareness and understanding of those suffering from a chronic condition, consider Rachel Lee as a source and tool for growth and inspiration.
“There is no greater agony than bearing an untold story inside you.”