ECHO Summit: Neurology in EDS & HSD

ECHO Summit: Neurology in EDS & HSD

It’s finally here! This blog I mean. With EDS, you have to count the simple things. Fall is here, and with it come the inevitable slew of…..FOLLOW UPS. More doctors appointments that you ever think might happen in two months, and you always imagine it...
Towards a Better Future

Towards a Better Future

In 2018, Pradeep Chopra, MD, pain management specialist with a special interest in Ehlers-Danlos Syndromes, said in his webinar, “EDS is not a disease. It is a form of the human body.” (Slide 7, Pradeep Chopra). This is the same message that has become so...
Furbuddies and Support to See You Through

Furbuddies and Support to See You Through

Have you ever felt overwhelmed by people and a sense that one more conversation will push you over the edge? If you have, you’re not alone. One of the most fatiguing and triggering tasks of a chronic condition is communicating with human beings. We are often so...
PlayDough is For Everyone!

PlayDough is For Everyone!

Homemade playdough is easy, fun and a perfect sensory activity. But did you know it is used for occupational and physical therapy too? This recipe is so soft and perfect for little hands and older hands with extra fragile and hypermobile joints. Working hypermobile...
A Cultural Approach to Long Term Health

A Cultural Approach to Long Term Health

Hypermobility Basics: A Cultural Approach to Long Term Health By Rachel Lee Davis Hello dear reader!  Before we start, a quick note about my background and the creation of this article: I was a dance educator and performer for over ten years. Combined teaching...