by RachelLee | Apr 2, 2023 | Autism, General, Mental Health
Over a decade ago now, I lost two children. My babes were only a couple months old but as research has well established, our minds and bodies crave connection with loved ones regardless of how old they are or visually present, and I have deeply loved all 5 of my...
by RachelLee | Feb 17, 2023 | General, Patients
SSRI’s shown to cause thickening of collagen in the mitral valve, exacerbating underlying valve dysfunctions. While mitral valve prolapse is rarely shown to require surgery when found in the hEDS population, research in the last few years has shown that it is a...
by RachelLee | Jul 20, 2022 | Patients
Let’s start off the week with a recap on Low Histamine Diet and Mast Cell Dysfunctions and/or Syndromes. What is it? What are THEY? Why do we need it? And, How does it Help? Histamine is one of the mast cells in your body, a piece of your immune system. Your...
by RachelLee | Nov 19, 2021 | General, Patients, Physicians
by Rachel Lee Davis, with Dr. Peter Bream, Jr., MD FSIR The Fight for Water Water is fundamental to human life. We are taught this in schools and in our homes, we experience this when we are thirsty. Some understand this because of their geography and access to wells...
by RachelLee | Nov 11, 2021 | General
It’s finally here! This blog I mean. With EDS, you have to count the simple things. Fall is here, and with it come the inevitable slew of…..FOLLOW UPS. More doctors appointments that you ever think might happen in two months, and you always imagine it...
by RachelLee | Oct 6, 2021 | Patients, Physicians
Posted September 30, 2021 A statement from The Ehlers-Danlos Society and the EDS and HSD International Consortium Pain Working Group. Pain is common among persons living with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) and is a major...
by RachelLee | Sep 19, 2021 | General, Genetics, Patients
Genetics. Whew! For Ehlers-Danlos Syndrome it’s gold standard. For hypermobile Ehlers-Danlos, it’s nearly impossible to SEE the geneticist nowadays, and Classic EDS isn’t far behind. The reason is because of the influx of patients demonstrating clearly to geneticists...
by RachelLee | Aug 31, 2021 | General, Patients, Physicians
In 2018, Pradeep Chopra, MD, pain management specialist with a special interest in Ehlers-Danlos Syndromes, said in his webinar, “EDS is not a disease. It is a form of the human body.” (Slide 7, Pradeep Chopra). This is the same message that has become so...
by RachelLee | Aug 24, 2021 | General
Have you ever felt overwhelmed by people and a sense that one more conversation will push you over the edge? If you have, you’re not alone. One of the most fatiguing and triggering tasks of a chronic condition is communicating with human beings. We are often so...
by RachelLee | Aug 17, 2021 | General
Homemade playdough is easy, fun and a perfect sensory activity. But did you know it is used for occupational and physical therapy too? This recipe is so soft and perfect for little hands and older hands with extra fragile and hypermobile joints. Working hypermobile...
