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What Mistakes Do Patients Make?

What Mistakes Do Patients Make?

by RachelLee | May 22, 2024 | Ehlers-Danlos Syndrome, General, Patients

“What mistakes as patients could we be making that we should be aware of?” I was recently asked this vital question. It is a brave one, a query most patients are constantly plagued by in their own thoughts but simultaneously reticent to consider. That is...
SSRI’s Cause Thickening of Collagen in Mitral Valve: A Risk to Ehlers-Danlos Patients

SSRI’s Cause Thickening of Collagen in Mitral Valve: A Risk to Ehlers-Danlos Patients

by RachelLee | Feb 17, 2023 | General, Patients

SSRI’s shown to cause thickening of collagen in the mitral valve, exacerbating underlying valve dysfunctions. While mitral valve prolapse is rarely shown to require surgery when found in the hEDS population, research in the last few years has shown that it is a...
The Fight for Water: Dehydration and Vascular Access needs in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

The Fight for Water: Dehydration and Vascular Access needs in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

by RachelLee | Nov 19, 2021 | General, Patients, Physicians

by Rachel Lee Davis, with Dr. Peter Bream, Jr., MD FSIR The Fight for Water Water is fundamental to human life. We are taught this in schools and in our homes, we experience this when we are thirsty. Some understand this because of their geography and access to wells...
Genetics Realities and What you Can Do about it

Genetics Realities and What you Can Do about it

by RachelLee | Sep 19, 2021 | General, Genetics, Patients

Genetics. Whew! For Ehlers-Danlos Syndrome it’s gold standard. For hypermobile Ehlers-Danlos, it’s nearly impossible to SEE the geneticist nowadays, and Classic EDS isn’t far behind. The reason is because of the influx of patients demonstrating clearly to geneticists...

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