by RachelLee | Sep 19, 2021 | General, Genetics, Patients
Genetics. Whew! For Ehlers-Danlos Syndrome it’s gold standard. For hypermobile Ehlers-Danlos, it’s nearly impossible to SEE the geneticist nowadays, and Classic EDS isn’t far behind. The reason is because of the influx of patients demonstrating clearly to geneticists...
by RachelLee | Aug 24, 2021 | General
Have you ever felt overwhelmed by people and a sense that one more conversation will push you over the edge? If you have, you’re not alone. One of the most fatiguing and triggering tasks of a chronic condition is communicating with human beings. We are often so...
by RachelLee | Aug 17, 2021 | General
Homemade playdough is easy, fun and a perfect sensory activity. But did you know it is used for occupational and physical therapy too? This recipe is so soft and perfect for little hands and older hands with extra fragile and hypermobile joints. Working hypermobile...
