by RachelLee | May 22, 2024 | Ehlers-Danlos Syndrome, General, Patients
“What mistakes as patients could we be making that we should be aware of?” I was recently asked this vital question. It is a brave one, a query most patients are constantly plagued by in their own thoughts but simultaneously reticent to consider. That is...
by RachelLee | Jul 19, 2023 | Ehlers-Danlos Syndrome, General, Patients
Let’s talk ENT’s, Vocal Therapists and Vocal dysfunction in EDS! My story: Severe chord bowing, hypertension in interior and exterior muscles, dystonia complicating all of the above, TMJ, resulting dysphagia – swallowing issues. Most EDSers develop...
by RachelLee | Feb 17, 2023 | General, Patients
SSRI’s shown to cause thickening of collagen in the mitral valve, exacerbating underlying valve dysfunctions. While mitral valve prolapse is rarely shown to require surgery when found in the hEDS population, research in the last few years has shown that it is a...
by RachelLee | Jul 20, 2022 | Patients
Let’s start off the week with a recap on Low Histamine Diet and Mast Cell Dysfunctions and/or Syndromes. What is it? What are THEY? Why do we need it? And, How does it Help? Histamine is one of the mast cells in your body, a piece of your immune system. Your...
by RachelLee | Nov 19, 2021 | General, Patients, Physicians
by Rachel Lee Davis, with Dr. Peter Bream, Jr., MD FSIR The Fight for Water Water is fundamental to human life. We are taught this in schools and in our homes, we experience this when we are thirsty. Some understand this because of their geography and access to wells...
